News
Cardiac Issues at Age 8
It's been a while since our last update. In that time Louie came down with the flu and it became too much for his little body. He started collapsing so...
Cardiac Issues at Age 8
It's been a while since our last update. In that time Louie came down with the flu and it became too much for his little body. He started collapsing so...
A special thank you to Rob at Glowbox Arena Today!
Today we went to Peppa Pigs big day out. When the tickets were booked they only had disability spots for wheelchair users only and not for non wheelchair users with...
A special thank you to Rob at Glowbox Arena Today!
Today we went to Peppa Pigs big day out. When the tickets were booked they only had disability spots for wheelchair users only and not for non wheelchair users with...
We're on the cover of UKs CHAT magazine this mo...
I'm beyond excited to share a preview of an interview I did with a magazine in the UK to raise awareness for ehlers danlos, mast cell activation, gastroparesis, postural orthostatic...
We're on the cover of UKs CHAT magazine this mo...
I'm beyond excited to share a preview of an interview I did with a magazine in the UK to raise awareness for ehlers danlos, mast cell activation, gastroparesis, postural orthostatic...
More than 1.5 million steps reached but the fig...
Well the end of EDS awareness month is over and I was able to reach more than 1.5 million steps since I started mid April. But the fight isn't over!...
More than 1.5 million steps reached but the fig...
Well the end of EDS awareness month is over and I was able to reach more than 1.5 million steps since I started mid April. But the fight isn't over!...
1 MILLION STEPS REACHED!!!! ❤️And a blog dedica...
Well I've done it! Over 1 million steps reached between April and now! 1 million steps reached for ehlers danlos! It's been a really tough journey, especially spending the last...
1 MILLION STEPS REACHED!!!! ❤️And a blog dedica...
Well I've done it! Over 1 million steps reached between April and now! 1 million steps reached for ehlers danlos! It's been a really tough journey, especially spending the last...